FNC Inc.

Florida – February 2014.
Photos by TJ Jensen.

Streaming for Dystonia

Streaming for Dystonia

On Friday, January 24, Billy gave a very special concert. It was the first time he had performed simultaneously to a live audience and an audience around the world. The concert, “Streaming for Dystonia,” was sponsored by the Dystonia Medical Research Foundation (DMRF) as part of a crusade to increase awareness of dystonia and to help raise funds for medical research. “Somebody in your circle of friends has dystonia,” said Billy at the concert. “It comes in so many forms, from someone suffering from writers’ cramp to someone whose neck muscles spasm so that they can’t straighten up to someone whose voice has become progressively hoarse.” These are all symptoms of dystonia, which makes it’s difficult to recognize,” he explained.
Billy considers himself fortunate to have found a way around his dystonia. He explained to the audience the way he now plays his guitar, with his left hand, and how he had to learn to fail his way to success. “As with dystonia, you can’t be afraid,” said Billy. For three years, Billy had suffered from the symptoms without it being properly diagnosed. During that time he lost his home, marriage, recording contracts and his music. “I’m here to help people find a way out of the trap that is dystonia,” said Billy. “I’m lucky because I can still do something I love to do.”
Billy is passionate about advancing the entire field of neurosciences. “The power of a chronic condition like dystonia, Parkinson’s or epilepsy to beat us down is really tremendous,” he said. Billy finds it an amazing coincidence that DMRF began its research into dystonia in 1976, the same year that he started playing guitar. “The worst thing that ever happened to me has unfolded to be the best thing that ever happened. To have this opportunity to play my music with meaning and purpose is truly a blessing. Thank you to all who turned out and tuned in to build awareness of dystonia!”
For more information about DMRF or to make a contribution, visit www.dystonia-foundation.org.
Written by Linda Ruhland
 
 

interview with donatelle

Interview with Donatelle

Interview with Donatelle

Donatelle

Billy’s Message Inspires Innovation in Medical Device Manufacturer

Treasa Springett, president of Donatelle, an award-winning manufacturer of devices for the medical industry, asked Billy McLaughlin to present his story to the company’s leadership team as part of the team’s future vision project, “Changing the Game”.  “I first met Billy during his presentation at an Executive Group Forum, led by Bill Mills,” she said. “I was amazed at the similarities between Billy’s story and what we’ve been experiencing at Donatelle, which is: ‘How do we as leaders face challenges and not fall back on what had always worked before?’” As a sole proprietor and artist stricken with dystonia, Billy simply couldn’t go back to what he had done before. He had to reinvent himself. The timing of Billy’s story happened to fit perfectly with Donatelle’s planning retreat, which was scheduled for the upcoming December.

Treasa surprised her leadership team by asking Billy to make a special appearance at their retreat and to share his story about overcoming “impossible” challenges. “I found Billy’s story empowering; it aligned so well with our leadership culture,” said Treasa. “In the global medical device marketplace our customers are challenged with rapid change every day. Billy’s message encouraged us to embrace change; recognize the need for it, be willing to address the challenge and adapt. Treasa intended Billy’s presentation to be a gift to her leadership team. “I was so excited to be able to book him for our December retreat, it was hard for me to keep it a secret. Billy’s story combined with his humor and music was fantastic,” she said.

Billy was not the first presenter to appear at a Donatelle leadership retreat. This time, however, the team had the added enjoyment of listening to Billy’s music along with his speech. More than enjoyment, Treasa said that Billy’s message resonated with the challenges that Donatelle and all companies face daily: How do you rethink change in the global market, which creates pressures you cannot anticipate? “Billy’s example of overcoming challenge inspired us to become the change we try to create; this had great personal and business relevance to us. Our mission at Donatelle is to create possibilities to improve the quality of life for humankind, one person at a time,” she explained.

After his performance, Billy was invited to join the group for an evening of fun and conversation. It was exciting for him to learn that some of the devices Donatelle is designing will treat the symptoms he suffers from focal dystonia. Treasa and the Donatelle leadership team look forward to having Billy return again to a future retreat. Treasa mentioned, “I’d like for Billy to delve deeper into his story so that we can learn more about his journey. Also, I think it will be great fun to add another hour of musical entertainment following his presentation so that we can continue to enjoy listening to Billy play.”

interview with donatelle

Billy with Treasa Springett

Epilepsy Foundation of Western WI

Epilepsy Foundation of Western Wisconsin

Epilepsy Foundation of Western Wisconsin
 “The Epilepsy Foundation of Western Wisconsin leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy.”

“There are not enough words of gratitude to Billy McLaughlin who was our incredible speaker for the Epilepsy Foundation of Western Wisconsin’s Share the Flame and Silent Auction on December 3rd, 2013 at Fanny Hill Dinner Theater in Eau Claire. Our guests who are business professionals, medical staff, family, and personal supporters of our mission, were absolutely amazed at Billy‘s powerful performance and inspirational story. He kept all of us spellbound, with his presentation and music.
“Many of our guests knew of his music and talent in the 1990’s and were amazed at the challenges he has faced over the past years with focal dystonia which forced him to relearn how to play his guitar. His personal story as a single father with a son, who has many challenges with epilepsy, warmed our hearts and created understanding  in the reality of how difficult living with seizures can be. His amazing personality, and determination to make his marvelous comeback and his life more meaningful and positive made an awesome impact on everyone!

“Billy has a kindness, charm, and caring demeanor about him, and he is able to relate, and talk to anyone! He changed our way of thinking and feeling and gave us the hope and new goals to focus on in our work and in our lives. Billy spoke to us as friends and left us with wanting to hear more of his music and his compassionate message over and over again. We are thankful for the uplifting “gift” Billy gave us that touched our lives and filled our hearts with his magic!”

-Lou Kelsey,Director of Client Services and Community Resources. Epilepsy Foundation of Western Wisconsin